i will always remember details about the session where carys' physical therapist told me her suspicions about my littlest.
the light overhead was flickering in an annoying manner. the PT, annie, was wearing a navy blue cardigan (i would like to think it was part of her uniform and that she never would have chose this for herself) and it had white furzies on it from being washed too often. she had a pink barrette in her hair.
she stretched little carys in quite a few directions, and focused on her legs and neck. she moved next to me and pointed out how carys' face was flat on one side and more rounded on the other: caused by poor muscle development.
then she moved away from me, and carys, who was lying on the table, not playing with her hands or kicking her legs. just lying there still sobbing from the painful stretches. it was if she didn't want to be part of my pain, and that we needed to make eye contact for her to determine how to introduce the conversation.
"what did (queen mary head pediatrician) dr lam tell you about marie?"
(they call her marie because the chinese have trouble pronouncing carys, those letters together are not a word for them. sela is also pronounced sella. fair enough. i like marie.)
"what do you mean?"
"what did she tell you you could expect?" and she gestured, she had nice nails, with her hand to carys lying there, still and red eyed. even then carys could produce tears.
and suddenly, i knew. what she didn't want to say but wanted me to realise.
"you think she has cerebral palsy."
"yes. we won't be able to know for sure for at least one year, but it seems so. the hips are so tight, the neck is so stiff and unyielding."
cerebral palsy.
in a minute of clarity, i decided that i would not overreact. crying didn't occur to me. trauma and bad news were nothing new to me, and i had three babies home from hospital to show for it. i would sift the information with other facts. how often she wanted to see carys, and when she next wanted to see her.
when should i make the next appointment for?
tomorrow. the sooner we can start improving her, the better chance she has.
tomorrow. this probed my internal alarm a little higher.
how often will you want to see her?
three times a week.
okay, this was serious. poor little carys.
do you understand what i mean about cerebral palsy?
yes i do.
you seem very calm.
i'm just grateful she's alive.
and i was. i am.
i went home and didn't do a lot of internet research. at one time i might have done, but this was not the time. they weren't going to know for at least one year, why put myself through the worry until i needed to.
but i did call my mum, which in itself is not unusual. we talk often. makes me smile, remembering the months of poverty level existence in hong kong when i called my mother maybe once a month and talked for ten minutes.
i told her about carys. i don't think i was overly hysterical, i tend to go flat and factual in these cases.
"well, tessie, if anyone can handle this, its you."
"oh, i know i can handle it, mum, its just, i don't want to."
that's what it came down to. i just wanted to lay my head down and rest easy for a while.
didn't happen. i don't know if i really expected it would, but i sure hoped for some relative calm. soon after sebastian's ears were tested and it was discovered his right ear had middle and inner hearing troubles. then it was really busy.
and now we are moving into 2005, and the triplets will be one year old for most of it. and we are going to learn more about how their extreme prematurity has affected their brains.
i know i can handle it. i know i will love them regardless of what they achieve or what doctors discover. i just am weary. and love doesn't rejuvenate, it actually tires me more. because if i didn't love them all so much, it wouldn't matter as much.
but i couldn't love them more, and so i am trapped and tired by the best thing in the world. love.
i have circles around my eyes while i am encircled in love.
lucky, weary, me.